Well a lot has happened to get to this point but rather than go back to day one i will just update you with what I know today. Mom and I arrived here in Aurora and are staying at the Extended Stay Deluxe room 131 located at 14095 E Evans Ave. ,Aurora , Co. 80014 (303)337-7000.
It is a very nice place with full kitchen so it is more like a small appt than a hotel room. It is pet friendly so Moms puppy "Alfie" has had fun exploring every corner of the entire facility!
After arriving Friday night I found myself already in the hospital with a cellulitis infection on my right thigh Sat and stayed hospitalized until Weds the 10th.
This gave the transplant team a chance to adjust all of my medications as well as drain my right lung again of 2.0 liters of fluid. This has become a weekly occurance. The alternative is that I cannot catch my breath or bend over so given that the needle isnt that bad.
The score that is used to determine where on "the list" one is in terms of transplant is calle a "MELD" score. Model end stage liver disease. This score is determined by how well the liver is functioning. So the idea being that those with the most need will be at the top of the list and receive transplants first. As of Tues the Dr told me that I was number three on the list (not just the hospital, but the entire region) and that there were two transplantes being done at my hospital that day!!!!
She did caution me that this will be the toughest several weeks because there are often times many false alarms with organs being undesirable for one reason or another.
So, the bottom line is that the transplant could be as soon as today and maybe several weeks.
I have found it increasingly difficult to keep everyone up to date so I will be using this blog to do so. Pass it along in case I forget someone. Thank you all for the prayers, love , and lifting me up to get this far! Update you soon! JB
Thanks for keeping us posted!!! Sounds like you dodged the stomach bug that knocked everyone out on Friday when you left. I'm glad you have your mom and Alfie to keep you company! We'll be watching the blog!
ReplyDeleteMy hero! :-) I have to say that I have had the extreme privilege of helping support and design the pre-trip training which included NO funny movies, NO sudden moves, NO big meals, NO tandem bike riding....all of this strenuous inactivity leading to the big recliner chair in Denver! :-) and NOBODY has looked forward to breaking training for that first good knee-slapper film as much as our hero. What to go, Jeffy Wayne! Can't believe you are finally there and this is finally happening!
ReplyDeleteHey Jeff, Glad to hear that you are now blogging :) Thanks for keeping us updated. I am sure that you are glad to be out of the hospital. Now I guess is the waiting game. I know that this time is going to be hard but we know that you can do anything you are a great friend, leader, and father. We are thinking and praying for you every day. Hope that you are getting some rest and I am so glad that mom is there to be with you. Take care. talk to you soon!
ReplyDeleteHey jeff, just checking in with you, hope that you had a "good" weekend.
ReplyDeleteToday is a great day!! Praying for you the next two days are the hardest!!!
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